Upon reaching back home, my husband and I had a bleak day. All looked too gloomy and we felt we were super unlucky when it came to the baby making job. We didn’t know what to do, the immunes were just not giving me a break -instead of lowering they just kept getting stronger. From TNF alpha being at 40 in March 2015, after all the efforts in 2015, it had risen to 47 in Jan 2016. I was doomed.
We were growing older and my immune was growing stronger – a combination we didn’t need to get a healthy baby!
My husband did a lot of research on fertility friends and he finally found a new way out. A lot of couples who didn’t conceive for years, had a laparoscopy and they conceived naturally afterwards. We decided to give it a go too – we had ignored having a laparoscopy done and we had jumped onto fertility treatments one after the other. Maybe it was this one thing that we really needed.
We had my laparoscopy done within the next few days and the results were all clear. There were no inflammations found inside me and turned out I really didn’t need to get it done. However, we were glad we finally had it done and it was out of the way now.
Although we should have been happy about the laparoscopy results coming out great – we weren’t. We had a huge fight over it coming out all clear! We were really desperate to have a baby anyhow and we believed that I had endometriosis which was causing all the treatments to fail. Not having found endometriosis was a bad thing for us because we didn’t have a problem to cure that was preventing us from having our baby! How sad had we become! The same ghost of marrying a second time was back on my husband’s head. I was shattered.
Due to all the fights, the plan that Dr Gorgy had for me was ignored. When I had seen him in London after my failed FET, he had advised me to have an IVIG the following month and repeat a cytokines test. We were just too lost and angry to continue any further treatment.
Then again when my husband saw all the bruises on my body from the LIT and clexane shots, he felt pity and sympathy for me and felt he couldn’t abandon me and especially because I was doing anything and everything for us – It wouldn’t be fair to leave me in the middle of nowhere at such a young age.
We had a telephone conversation with Dr Gorgy because we felt only doing IVIG wasn’t helping me. So he advised me to take hydroxychloroquine 200 mg twice a day, Vitamin D 5000 I.U daily (for my vitamin D deficiency – even Vitamin D deficiency can cause immunes to spike and stop implantation from happening) and to administer 1 IVIG or intralipid infusion and then retest my cytokines.
After 1 month of hydroxychloroquine and 2 weeks after my intralipid infusion (IVIG is too expensive to be done all the time) – I retested my cytokines and they were still at 47! I was literally doomed and hopeless! We had read lots of success stories about hydroxychloroquine doing wonders for women and it had even enabled a woman to have a baby after 20 miscarriages but I was just the unluckiest infertile patient ever!
I had a telephone appointment with DR. Gorgy and he set me up on a rigorous new plan:
- Humira shot 1
- 2 weeks later Humira shot 2
- 10 days later 1 IVIG
- Test cytokines 3 weeks days later
- 2 LIT sessions in between all this
- Hydroxychloroquine 200 mg twice daily
This was a very intense plan and I immediately started on it. It took me 7 weeks to complete it from March -April.
I had to travel to London just for LIT between this time period, God bless my husband for bearing all the expenses and my sister for being so welcoming and caring always. When I was in London for my LIT, my sister advised me to just go for 1 cupping session. Cupping was an old religious way to healing used by the prophet Muhammad (PBUH) and it cleans the toxic blood from our bodies making medicines work on our bodies better. It makes the body feel extremely relaxed and pure after the session. I decided to give it a go – maybe the hydroxychloroquine would work better on me after the toxic blood was out of me. So i gave it a go and I felt amazing after the session – I had had massages done in brilliant spas in the past and they hadn’t been as soothing as this 40 pound session of just 20 minutes! The doctor at the cupping place sincerely advised me on my diet. Although I had been on the gluten free and sugar free diet since May 2015 – It wasn’t really a perfect diet that I was following. For instance, I was eating rice daily and no bread but I wasn’t concentrating on what rice I was eating! I was having white rice which is loaded with sugar! I should have been taking brown rice and that would be perfect for a gluten free sugar free claimed diet.Secondly, I was consuming red meat on a daily basis (I was doing this for a protein rich diet, I had stopped taking chicken since a few years ever since I found out I had PCOs because commercial farms inject tonnes of hormones into chickens ). Red meat can cause severe inflammations in the body – this was possibly making my immunes go higher and I wasn’t realizing! The doctor advised me start a vegetable and lentil based diet and to stop eating red meat so much. Then she also advised me to control my dairy consumption! When I was on my IVF protocol with the ARGC, they had advised me to drink 1 litre of milk and 3-4 litres of water daily. This amount of dairy consumption made me gain some healthy weight and overall my hair and skin became amazing. I loved this new bit in me after years of weight loss, hair loss and dullness of skin due to the all fertility drugs, treatments and depression. I had continued this regime ever since October 2015 and it was March 2016 – it was all clear as to why my immunes kept going higher even though I was on so many infusions and drugs to lower them! Diet is really important, I cannot stress it enough!
So basically I had only been boasting and fooling around thinking I was on a gluten free and sugar free diet! My diet was basically loaded with gluten and sugar containing foods without knowing. I was such a bad mess. I started a pure diet now, vegetable and protein based. No more white rice and no milk, cheese, butter whatsoever. 3 litres of water daily (big achievement for me because I could barely drink 1.5 litres until a year ago). Lots of almonds and walnuts. Fatty fish twice a week. Lots of lentils for protein and only brown rice at all times.
Dr Gorgy wanted me to have an embryo transfer in the cycle as soon as this protocol was completed. He also advised me to start Prednisolon 40 mg and Clexane 40 mg daily from day 5 of my cycle then on day 7 to have another IVIG infusion.
Too many expenses and medicines were blasted upon us. he he.
Finally the protocol was completed and I was all set to retest my cytokines. Some issue happened at the laboratory and my blood was not able to be checked for the cytokines! So we just decided to ignore the testing for now and go ahead with the transfer. AF arrived and so began the estrogen pills, clexane, prednisolone for the FET scheduled in May 2016.I did IVIG infusion on day 7 as instructed and I was ready for London all over again to bring my baby back home.